Christian has to do a nightly peritoneal dialysis treatment. You’ll see what he has to do to prepare his treatments.
This is my routine every night. I can never skip this, EVER. It’s what keeps me alive, but it is a hassle. I spend a good 25 to 30 minutes setting up my machine. Dialysis replaces the function of the kidneys, which filters your blood, regulate blood pressure, and removes additional water from your body. During peritoneal dialysis, liquid is placed in your peritoneal (a thin layer of skin that covers your internal organs). A special solution helps draw out the waste in the blood and extra fluids. It does it so well, it also removes nutrients my body needs. Throughout the night, the machine fills me up with the solution, then drains it after about 2 hours of dwelling. This happens about 4 times a night in a span of 10 hours (and that’s if everything is working i.e.:, no pinched tubes, machine doesn’t malfunction).
I have to take my machine everywhere. So when I travel, I am lugging that huge Pelican case with my machine. To add to that, I also need to bring a cassette (which has the tubes that connect to me) a drain bag, along with 3 bags of solution (one of each for each night I travel). Traveling is do-able, but also very tedious. I have to order boxes of my solutions ahead of time to get it delivered to the hotel, which is about a month in advance before my trip. At the airport, I get hassled by TSA every time about my machine. TSA employees are unfamiliar with the machine so I get stopped and searched. When we stay at hotels, we are very particular with where we stay since the environment I do my treatments must be very clean to prevent infections.
I’ve found the struggle with being able to wake up early was tough. Before, I was able to sleep pretty late and wake up early if I need to. But now I have to time when I want to wake up to the time when I plug into my machine at night. This made working and getting to work early very difficult. Thank the Lord, my job is very flexible with my hours and allows me to come in later, if needed.
This is one of the things I definitely will not miss if I get my transplant.